busy week

Virginia has had a busy week filled with lots of progress, alot of growing, a steady stream of visitors and some new experiences.

Heaths parents, aunt, sister, brother in law, and nephews came down to Connecticut for a few days to visit and my parents, sister, brother in law and nieces are arriving tomorrow for a visit. We are enjoying celebrating the holidays with our families, showing off our growing little girl, and getting their help in getting Virginia's room together. We are thankful to each of them for their love and support, home cooked meals, help around the house and always knowing how to make us smile.

Virginia is up to 3lbs 6ozs and 16.5" long. She is now on the lowest level of respiratory support and has truly made tremendous progress in the past few weeks. They have tried to bottle feed her, but it is clear that she needs a little more time until she is ready for that challenge. Like every other milestone, we are confident that Virginia will tackle bottle feeding when she is ready.

We are looking forward to the new year and know that 2012 will be a great year for our family. We hope that it is filled with good health, lot of laughter and happiness for our family and yours.

Our Christmas Gift

Virginia gave us a wonderful gift yesterday, she is now off of mechanical respiratory support and on nasal cannula. This is more wonderful progress. She is still on "room air" oxygen and breathing comfortably.

Virginia's doctors ordered a renal ultrasound last week because of our family history of kidney problems and did discover a few kidney stones which are likely the result of some of the medications that she had several weeks ago. She has not shown any problems clinically and we likely would have never known about them if they had not performed the ultrasound. We are hopeful that the stones won't present any problems, but the nephrologists will regularly check them.

The focus in the next few weeks will start to shift to oral feedings and transitioning to an open crib. While these next steps will certainly present new challenges for Virginia, we are so excited to be able to be more and more involved in her care and help her along in experiencing more and more "baby" milestones.

Specific prayers that we could use this weekend:

That Virginia is able to continue her great respiratory progress.

That Virginia continues to steadily gain weight.

That Virginia's kidney stones cause her no problems, or better yet reslove entirely.

That Virginia takes to oral feedings well.

We cannot thank you all enough for all of the good thoughts and prayers that you have sent our way. We ask you that you continue them into 2012. We expect it to be a very exciting year for us, but recognize that there will be many challenges along the way. For now, we are going to celebrate all of the great things that Virginia has been doing lately and enjoy the holidays with our little girl.

Wishing each of you a very happy holiday season

2 Months Old!

Virginia is 2 months old today. Its hard to say if the time has flown by or gone at a snail's pace. I suppose it depends on the week. Lately Virginia has been doing a lot of growing and has been making great progress, so the days are flying by. She is up to 3 pounds and was moved out of the intensive care room and into a transitional care room this morning. We are thrilled with these milestones!

We feel so blessed this holiday season. While this is never how we imagined starting our journey as a family, we are so happy, thankful, and fortunate to be where we are. We are looking forward to celebrating the holidays and seeing family and friends in the coming week, but we are also looking forward to a quiet Christmas day as a family of 3 come Sunday.

photos

Virginia has now doubled her birth weight. She is 2 pounds 14 ounces and almost 16 inches long. All of her nurses are amazed how well she has been doing and how big she is looking. There are several tiny new babies in Virginia's NICU room. Seeing these new babies around us is a great reminder of how far we have come just like passing the rooms with the "big babies" is a good reminder of the good things to come.

The picture below was taken while her nurses were changing out her CPAP equipment and cap. It was nice to get a good look at her face without all of the tubing.

Even more good news

Virginia was switched from NIP to CPAP on Friday and they have been lowering her CPAP settings each day. She is still on "room air" oxygen support and has been maintaining her oxygen levels and heart rate wonderfully! She has certainly turned a corner in her respiratory progress in the past week and a half and we pray that she continues to improve. This is truly the best christmas gift we could ever ask for.

I will post some recent photos tonight or tomorrow. Thank you all for your continued good thoughts and prayers.

Good News

Virginia was extubated again on Saturday and has been doing great on NIP! Below is a quick summary of the different types of respiratory support that Virginia has been on or will eventually be on:

endotrachial tube and ventilator: a tube placed directly into the airway that delivers direct breaths with specified pressures and oxygen concentration.

NIP: Prongs placed in the nostrils that provide intermittent breaths with specified pressures and oxygen concentration.

CPAP: same as the NIP but instead of providing breaths it provides continuous pressure.

Nasal Cannula: Prongs placed in the nostrils that provide continuous pressure at a lower rate than CPAP.

Everyone is very happy with how Virginia is doing off of the vent. Her settings are fairly low and she is on "room air," meaning the oxygen concentration is the same that you or I breath everyday (21% oxygen). She has had very little apnea and her breathing is nice and comfortable.

Now that she is extubated she has been sucking on a pacifier and let us hear her first cry. Even 7 weeks after most people hear their baby cry for the first time, it was still the most beautiful sound in the world.

our little burrito with her big pacifier

Happy Holidays from Virginia

In Lieu of Holiday Cards this year, we are e-wishing each of you a very happy holiday season. We are so happy to celebrate Virginia's first christmas together as a family.