Virginia has had pretty uneventful days on Tuesday and Wednesday. Uneventful days are good days! They have been able to continue to lower her ventilator and her blood pressure has be mostly stable off of her medications. Her Lumbar Puncture culture is still negative, which is great, but they will continue to watch it for 5 more days. The big hurdle in the next few days will be to get her central line in successfully.
Today was discharge day for me, which was difficult emotionally and physically. Thankfully our day was made much brighter by being able to hold Virginia in my hands while they changed her bassinet linens and getting to change her teeny tiny diaper. I have included a few photos below. She has lots of wires and tubing on her, but that has become very normal to us. We love watching her furrow her brow, try to open her eyes, wiggle her huge feet and grab at her tubes with her hands.
We could use the same specific prayers as yesterday:
That her lumbar puncture cultures continue to come back negative.
That her doctors are able to further lower her ventilator settings.
That the doctors are able to successfully put a central line in so that Virginia has a more stable access point for her medications.
That her second head scan and next chest xray come back clear.
Thank you all for your continued prayers and support! It is powerful